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| Thoughts & prayers from Canada! |
Join us in prayer!
Tuesday, October 22, 2013
Prayer Warrior Spotting - Canada
Another prayer warrior sighting! This time in Niagara, Canada!
Join us in prayer!
Join us in prayer!
Monday, October 21, 2013
It's Moving Week
The following update is from Natalie!
Reminder, it is Day 3 for the Novena to St. Jude! Keep praying along with us!
Join us in prayer!
It's moving week for the Peters! -- which explains a lull in our blogging. Here are some updates!
Natalie and a team of friends are moving the Peters into their new apt this Saturday. The following day, Thomas has a day pass from rehab to visit the new apartment. He is very excited to see their new home for the first time and the couple will be able to ensure the set-up is workable for Thomas.
They have been very busy with preparations for his transition home! He is scheduled for discharge on the 29th of this month, if all goes according to plan! As we have mentioned before, he will then be in out-patient rehab 3 days per week. Those specifics are still being organized. His therapists have been helping them determine what medical supplies and equipment will be needed, including a hospital bed and power lift to help get him in and out of bed. Thomas' therapy sessions continue as usual, and day by day they see improvement, but there is an even greater focus right now on his occupational therapy sessions focusing on home-skills. Natalie continues spending sessions at rehab for home-care training and practice with Thomas. They will take a short break from out-patient rehab during his first week home, so they can settle into their own routine for his care. During his first week home, they hope to have a home health aide to assist during this transition. During this week, Natalie will begin a transition back to work and plans to work primarily from home.
Last week Thomas had an outing to the Metro Access Headquarters here in DC to apply for his disability membership. He will be using Metro Access to commute to rehab.
Thomas' episodes of AD have been under control since the last update and for several days now he has had no trouble with his blood pressure. AD is something that will always be a factor, but becoming familiar with the triggers has been a great help!
Reminder, it is Day 3 for the Novena to St. Jude! Keep praying along with us!
Join us in prayer!
Saturday, October 19, 2013
Novena to St. Jude Starts Tonight!
Dear friends: Thomas and Natalie celebrated their 6 month anniversary today. Thursday was 3 months since the accident, and in 10 short days, Thomas is going to be discharged from rehab. (Meanwhile, Natalie is moving into a new handicap accessible apartment, and finalizing all the may details arrangements to make home living possible for Thomas.)
In the midst of all of this is (on October 28th) the Feast of St. Jude. Saint Jude is one of Thomas and Natalie's dearest patrons (Natalie credits him with their getting together in the first place). He is also the patron of impossible causes, things "almost despaired of," (as well as hospital workers and hospitals).
We would love for you to join us in this novena -- one of the oldest novenas of the Church. You can begin it tonight and end it October 27th, or you can begin it tomorrow and end it on October 28th -- his feast day!
The prayer is below, and also linked on the Novena page. Thank you, as always, for your love and support!
Novena To St. Jude
Most holy Apostle, St. Jude, faithful servant and friend of Jesus, the Church honors and invokes you universally, as the patron of difficult cases, of things almost despaired of, Pray for me, I am so helpless and alone.
Intercede with God for me that He bring visible and speedy help where help is almost despaired of. Come to my assistance in this great need that I may receive the consolation and help of heaven in all my necessities, tribulations, and sufferings, particularly -(make your request here)- and that I may praise God with you and all the saints forever. I promise, O Blessed St. Jude, to be ever mindful of this great favor granted me by God and to always honor you as my special and powerful patron, and to gratefully encourage devotion to you. Amen
May the Most Sacred Heart of Jesus be adored, and loved in all the tabernacles until the end of time. Amen.
May the most Sacred Heart of Jesus be praised and glorified now and forever. Amen
St. Jude pray for us and hear our prayers. Amen.
Blessed be the Sacred Heart of JesusBlessed be the Immaculate Heart of MaryBlessed be St. Jude Thaddeus, in all the world and for all Eternity.
Our Father...
Hail Mary...
(Icon written by Anna Edelman, Windows Into Heaven Icons)
Join us in prayer!
In the midst of all of this is (on October 28th) the Feast of St. Jude. Saint Jude is one of Thomas and Natalie's dearest patrons (Natalie credits him with their getting together in the first place). He is also the patron of impossible causes, things "almost despaired of," (as well as hospital workers and hospitals).
We would love for you to join us in this novena -- one of the oldest novenas of the Church. You can begin it tonight and end it October 27th, or you can begin it tomorrow and end it on October 28th -- his feast day!
The prayer is below, and also linked on the Novena page. Thank you, as always, for your love and support!
Novena To St. Jude
Most holy Apostle, St. Jude, faithful servant and friend of Jesus, the Church honors and invokes you universally, as the patron of difficult cases, of things almost despaired of, Pray for me, I am so helpless and alone.
Intercede with God for me that He bring visible and speedy help where help is almost despaired of. Come to my assistance in this great need that I may receive the consolation and help of heaven in all my necessities, tribulations, and sufferings, particularly -(make your request here)- and that I may praise God with you and all the saints forever. I promise, O Blessed St. Jude, to be ever mindful of this great favor granted me by God and to always honor you as my special and powerful patron, and to gratefully encourage devotion to you. Amen
May the Most Sacred Heart of Jesus be adored, and loved in all the tabernacles until the end of time. Amen.
May the most Sacred Heart of Jesus be praised and glorified now and forever. Amen
St. Jude pray for us and hear our prayers. Amen.
Blessed be the Sacred Heart of JesusBlessed be the Immaculate Heart of MaryBlessed be St. Jude Thaddeus, in all the world and for all Eternity.
Our Father...
Hail Mary...
(Icon written by Anna Edelman, Windows Into Heaven Icons)
Join us in prayer!
Tuesday, October 15, 2013
Prayer Warrior Spotting - Rome
Another prayer warrior has been spotted: an especially perfect place for prayers for the American Papist - St. Peter's Basilica, Rome, Italy! Thank you for sharing the photo and of course for the prayers!
Join us in prayer!
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| Just a quick note to let you know that you were prayed for in Rome! |
Join us in prayer!
Thursday, October 10, 2013
Update: AD, Leg Muscles, Fingers + the St. Francis Novena!
Straight from Natalie:
Since arriving at rehab, we have been learning a lot about a syndrome, common to all SCI (spinal cord injury) patients, called autonomic dysrefelxia (known as AD). AD is very dangerous and can be life-threatening if not treated immediately. AD can be triggered by any persistent irritant, such as full bowel or bladder, being too hot or too cold, restrictive clothing, stress, or pain.
Around 3am Monday morning Thomas experienced his first episode of AD. The irritant was successfully identified, and eventually they were able to get his blood pressure down, but his headache persisted and he was taken to the emergency room for a CTscan, as a precautionary measure, to ensure that no brain damage occurred. By the time everything was resolved, Thomas had lost the night's sleep and was too fatigued to participate in therapy that day. The following day Thomas had a normal day of rehab, but later, Thomas and Natalie were enjoying a quiet evening when he had another episode of AD. After a painful and concerning 2 hours, the trigger was once again identified.
AD is very serious, but it is common among SCI patients. The doctors and nurses at rehab are very familiar with it and are educating Thomas and Natalie about what to do when it occurs. These episodes are unsettling, but they are a blessing in disguise: the couple is glad they are experiencing this before being discharged. Every person's system has different triggers and their body reacts differently. They are learning what triggers AD for Thomas and what his symptoms are. This will be life-saving in future episodes.
Some exciting news to share -- Thomas has some new muscle groups waking up! His adductors (inner thigh muscle) and his left calf muscle. Muscle strength is tested on a scale from 1-5; Thomas' are at a 1 on the scale, but it's one more group of muscles his therapists can begin working on!
A special thank you to all of you who have joined us in our novena to St. Francis for the recovery of Thomas' fingers (which is still on-going). This week he has seen some return! He now has slight independent movement of his left thumb, pointer finger, ring finger, and pinky! Again, he is a 1 on the scale of strength, but this is incredibly exciting to see! Today his therapists started stimming his left hand to encourage these new muscles!
Thomas and Natalie continue to have days of training together, focusing on different types of transfers, bed mobility, bathing, and weight lifting. They have also been busy making preparations for Thomas' discharge home. There are numerous details to sort out between his therapists and the insurance company to make sure their new apartment is prepared to meet the needs of his care.
Join us in prayer!
Since arriving at rehab, we have been learning a lot about a syndrome, common to all SCI (spinal cord injury) patients, called autonomic dysrefelxia (known as AD). AD is very dangerous and can be life-threatening if not treated immediately. AD can be triggered by any persistent irritant, such as full bowel or bladder, being too hot or too cold, restrictive clothing, stress, or pain.
Around 3am Monday morning Thomas experienced his first episode of AD. The irritant was successfully identified, and eventually they were able to get his blood pressure down, but his headache persisted and he was taken to the emergency room for a CTscan, as a precautionary measure, to ensure that no brain damage occurred. By the time everything was resolved, Thomas had lost the night's sleep and was too fatigued to participate in therapy that day. The following day Thomas had a normal day of rehab, but later, Thomas and Natalie were enjoying a quiet evening when he had another episode of AD. After a painful and concerning 2 hours, the trigger was once again identified.
AD is very serious, but it is common among SCI patients. The doctors and nurses at rehab are very familiar with it and are educating Thomas and Natalie about what to do when it occurs. These episodes are unsettling, but they are a blessing in disguise: the couple is glad they are experiencing this before being discharged. Every person's system has different triggers and their body reacts differently. They are learning what triggers AD for Thomas and what his symptoms are. This will be life-saving in future episodes.
Some exciting news to share -- Thomas has some new muscle groups waking up! His adductors (inner thigh muscle) and his left calf muscle. Muscle strength is tested on a scale from 1-5; Thomas' are at a 1 on the scale, but it's one more group of muscles his therapists can begin working on!
A special thank you to all of you who have joined us in our novena to St. Francis for the recovery of Thomas' fingers (which is still on-going). This week he has seen some return! He now has slight independent movement of his left thumb, pointer finger, ring finger, and pinky! Again, he is a 1 on the scale of strength, but this is incredibly exciting to see! Today his therapists started stimming his left hand to encourage these new muscles!
Thomas and Natalie continue to have days of training together, focusing on different types of transfers, bed mobility, bathing, and weight lifting. They have also been busy making preparations for Thomas' discharge home. There are numerous details to sort out between his therapists and the insurance company to make sure their new apartment is prepared to meet the needs of his care.
Join us in prayer!
Sunday, October 6, 2013
Prayer Warrior Spotting - TX & CA
Prayer Warrior Spottings in Beeville, TX and San Francisco, CA! Thank you for sharing the photos and of course, for the prayers!
Also, as a reminder it is Day 3 of the Novena to St. Francis!
Join us in prayer!
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| Shared via Twitter: "Look at what Thomas & Natalie sent me!" |
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| "Prayers from the National Shrine of St. Francis in the City of St. Francis on the Feast Day of St. Francis." |
Join us in prayer!
Friday, October 4, 2013
St. Francis Novena, Wheelchairs + an Adventure Outdoors
Hi All! Sorry for the silence: it's been a busy busy week for Thomas and Natalie!
Many of you may not know that Natalie will be assuming the role of care giver, rather than having home assistance. This week Natalie spent her first full day at rehab working with Thomas and learning the techniques for his home care. They specifically worked on practicing transfers (from chair to bed, bed to chair, etc.). "It's fun to be working side by side together!" Through October she will be spending a lot of time at rehab with him, learning and practicing everything to ensure his transition home is successful.
His team is in agreement that he will most likely be discharged the beginning of November, just in time to come home to the new apartment. He will then begin their day program, which is the same number of hours of therapy per day, but they get to live at home! And to that end, after a long search, they have found a new apartment that is wheelchair accessible. Natalie wrote: "Thank you for all of your prayers and tips to help us with our search!"
They also had a meeting this week with the rehab's wheelchair representative. Insurance will cover the one chair per seven years and there has been a lot of discussion about whether to get Thomas a power chair or a manual chair to go home in. For the longer-term a manual chair is ideal, for many reasons, but Thomas is not quite strong enough to be using a manual exclusively. But, because his status is changing (meaning, he continues to gain function), the wheelchair rep is giving Thomas a free loaner power chair until he is ready to purchase a manual chair! Great news!
Thomas and fellow patients were taken on an outing a few miles from rehab to give them real-world practice in their wheelchairs. They were given free time to wander and told to identify "barriers" in the community. Thomas said it went really well, but that barriers were certainly opening doors in the manual wheelchair, sidewalk ramps when crossing the street, and uneven sidewalks. He said people were friendly and helpful. He bought a coffee and, since we're having an Indian Summer in DC, he bought a volleyball to practice throwing! A successful excursion!
Lastly, yesterday Thomas began moving his entire left foot at the hinge! It's incredibly exciting!
NOVENA TO ST. FRANCIS
A Dominica Friar shared this story of St. Francis of Assisi (who's feast we celebrate today):
Click here for the Litany of St. Francis and his prayer to the Immaculate Conception.
(Or click the "Novena" link above.)
Join us in prayer!
Many of you may not know that Natalie will be assuming the role of care giver, rather than having home assistance. This week Natalie spent her first full day at rehab working with Thomas and learning the techniques for his home care. They specifically worked on practicing transfers (from chair to bed, bed to chair, etc.). "It's fun to be working side by side together!" Through October she will be spending a lot of time at rehab with him, learning and practicing everything to ensure his transition home is successful.
His team is in agreement that he will most likely be discharged the beginning of November, just in time to come home to the new apartment. He will then begin their day program, which is the same number of hours of therapy per day, but they get to live at home! And to that end, after a long search, they have found a new apartment that is wheelchair accessible. Natalie wrote: "Thank you for all of your prayers and tips to help us with our search!"
They also had a meeting this week with the rehab's wheelchair representative. Insurance will cover the one chair per seven years and there has been a lot of discussion about whether to get Thomas a power chair or a manual chair to go home in. For the longer-term a manual chair is ideal, for many reasons, but Thomas is not quite strong enough to be using a manual exclusively. But, because his status is changing (meaning, he continues to gain function), the wheelchair rep is giving Thomas a free loaner power chair until he is ready to purchase a manual chair! Great news!
Thomas and fellow patients were taken on an outing a few miles from rehab to give them real-world practice in their wheelchairs. They were given free time to wander and told to identify "barriers" in the community. Thomas said it went really well, but that barriers were certainly opening doors in the manual wheelchair, sidewalk ramps when crossing the street, and uneven sidewalks. He said people were friendly and helpful. He bought a coffee and, since we're having an Indian Summer in DC, he bought a volleyball to practice throwing! A successful excursion!
Lastly, yesterday Thomas began moving his entire left foot at the hinge! It's incredibly exciting!
NOVENA TO ST. FRANCIS
A Dominica Friar shared this story of St. Francis of Assisi (who's feast we celebrate today):
At Gubbio, there was a woman with both hands so crippled that she was unable to handle anything with them. When she heard that Saint Francis had entered the city, she immediately ran to him. With a sad and mournful face she showed him her crippled hands and begged him to touch them. He was moved with great pity. He touched her hands and healed them. The woman immediately returned home full of joy, made a cheesecake with her own hands, and offered it to the holy man. He kindly took a little of that cake and told her to eat the rest of it with her family.This inspired Thomas to begin praying to St. Francis for recovery of mobility in his fingers. Thomas and Natalie are starting a novena to St. Francis today, and we invite you all to join us!
— The Life of Saint Francis by Thomas of Celano (1229)
Click here for the Litany of St. Francis and his prayer to the Immaculate Conception.
(Or click the "Novena" link above.)
Join us in prayer!
Monday, September 30, 2013
Family, Standing Frame, & Pizza
We have some good news to share today!
Thomas hit a new record of 25 minutes in the standing frame, made possible because his glute muscles came back!
Thomas is also making progress with his manual wheelchair. He still relies on taking breaks using the power chair... but progress is good!
Thomas has been wearing his glasses since the accident, but they were becoming rather a nuisance during his work outs in the gym. Together with his OT therapist, they figured out a way for him to put his contacts in for the first time!
Thomas and Natalie enjoyed a wonderful weekend with their mothers and a good friend from back home. The weekend was filled with picnics in the garden at rehab, catching up, playing games, and Thomas' favorite Georgetown pizza!
Join us in prayer!
Thomas hit a new record of 25 minutes in the standing frame, made possible because his glute muscles came back!
Thomas is also making progress with his manual wheelchair. He still relies on taking breaks using the power chair... but progress is good!
Thomas has been wearing his glasses since the accident, but they were becoming rather a nuisance during his work outs in the gym. Together with his OT therapist, they figured out a way for him to put his contacts in for the first time!
Thomas and Natalie enjoyed a wonderful weekend with their mothers and a good friend from back home. The weekend was filled with picnics in the garden at rehab, catching up, playing games, and Thomas' favorite Georgetown pizza!
Join us in prayer!
Saturday, September 28, 2013
Prayer Warrior Spotting - Ohio
Thomas & Natalie excitedly welcomed their mothers and a friend into DC last night. They will be enjoying time with their guests this weekend and an update will be shared early next week.
In the mean time ... prayer warriors have been spotted in Granville, OH & Toledo, OH!
Join us in prayer!
In the mean time ... prayer warriors have been spotted in Granville, OH & Toledo, OH!
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| "Was overjoyed when I received this in my mailbox today. Couldn't be any more honored to wear this." |
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| Thank you for the bracelets! It reminds me everyday what a journey you have been through and how strong you both are. You are constantly in our prayers!! |
Join us in prayer!
Wednesday, September 25, 2013
Shock Trauma Follow Up & Au Bon Pain
Thomas and Natalie went to Baltimore yesterday for Thomas' follow up appointments at Shock Trauma.
Departing in the early morning hours in the handicap accessible van (an ambulance-type van that has a powered flat lift to get Thomas and wheelchair inside), they arrived at the out-patient shock trauma clinic, and Thomas was transferred to a stretcher and taken for a CTscan to look at his fusion. Following the scan, they met with Thomas' surgeon and another attending physican on the Shock Trauma team. They were thrilled to see Thomas "looking fantastic!" The meeting went very well and the Doctors confirmed that Thomas is now considered ASIA C because he has regained some controlled movement below his level of injury -- he can now move 4 out of 5 toes in his left foot! They were happy with the CTscan results and said "everything looks very good!"
The surprise of the morning was when the Doctor proceeded to remove Thomas' surgical collar and throw it in the trash! "Well then, guess we don't need that anymore!" While Thomas has been feeling so much better and stronger in his neck, he and Natalie definitely weren't expecting him to be cleared for the collar to be removed! And you can imagine how thrilled Thomas is! They did give him a soft collar for him to wear for comfort whenever he wants, which he did for the very bumpy ride back to DC. They have asked to see him again in 6 weeks.
The driver had told Thomas and Natalie that they could take as long as they needed, so they made a visit to the 4th floor to see their nurses! Natalie said, "It was a very surreal experience, but really good to see the nurses and respiratory techs! Everyone was so thrilled to see Thom and kept saying how incredible the transformation is so far!"
Before the long trek back to DC, the two sat at Au Bon Pain (where Natalie and other visitors shared countless meals) together for lunch...and Thom was thrilled to finally get a sandwich of his own.
Join us in prayer!
Departing in the early morning hours in the handicap accessible van (an ambulance-type van that has a powered flat lift to get Thomas and wheelchair inside), they arrived at the out-patient shock trauma clinic, and Thomas was transferred to a stretcher and taken for a CTscan to look at his fusion. Following the scan, they met with Thomas' surgeon and another attending physican on the Shock Trauma team. They were thrilled to see Thomas "looking fantastic!" The meeting went very well and the Doctors confirmed that Thomas is now considered ASIA C because he has regained some controlled movement below his level of injury -- he can now move 4 out of 5 toes in his left foot! They were happy with the CTscan results and said "everything looks very good!"
The surprise of the morning was when the Doctor proceeded to remove Thomas' surgical collar and throw it in the trash! "Well then, guess we don't need that anymore!" While Thomas has been feeling so much better and stronger in his neck, he and Natalie definitely weren't expecting him to be cleared for the collar to be removed! And you can imagine how thrilled Thomas is! They did give him a soft collar for him to wear for comfort whenever he wants, which he did for the very bumpy ride back to DC. They have asked to see him again in 6 weeks.
The driver had told Thomas and Natalie that they could take as long as they needed, so they made a visit to the 4th floor to see their nurses! Natalie said, "It was a very surreal experience, but really good to see the nurses and respiratory techs! Everyone was so thrilled to see Thom and kept saying how incredible the transformation is so far!"
Before the long trek back to DC, the two sat at Au Bon Pain (where Natalie and other visitors shared countless meals) together for lunch...and Thom was thrilled to finally get a sandwich of his own.
Join us in prayer!
Monday, September 23, 2013
Superheroes of the Real World
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Thomas and Natalie's follow-up appointment with the University of Maryland Shock Trauma team of neurosurgeons was postponed till tomorrow, so we don't have much to update you on. These days have been ones of steady work for Thomas, and, during the weekend, much needed rest and quiet.
In rehab, Thomas began working on transfers -- from his bed to the wheelchair
and his wheelchair to an elevated mat in the gym. This is done using a
transfer board and required maximum assistance from his therapist. The
long-term goal is for Thomas to be able to do transfers with 25% assist
(essentially just being spotted by another individual). It will take a
long time to work up to that goal; transfers require an incredible
amount of upper body strength and balance. But an exciting start!
He was fitted for a customized manual wheelchair
(leather gloves and rubber tubing on the wheels help him grip the
wheels)! He began using it and will be alternating between the power
wheelchair and manual one as his strength increases. He is really
excited about it!
His therapist added a weightlifting class to his
routine. It was his first time using the outpatient gym -- a very large
room with a wall of windows that let in lots of natural light and a
view of the changing leaves outside. Not a bad work-out space! He was
able to do 5 pounds, but he is just getting started!
Thomas said, "These three things are a reminder of
how much more there is to learn, and how much stronger I will need to be
before mastering these tasks, but this is an exciting start!"
+ + +
We also want to share with you this incredible article about the Shock Trauma Center at UMMC, whom Natalie calls the "superheroes of the real world." From the Baltimore Sun.
Within minutes, the patients are wheeled into the Trauma Resuscitation Unit, rushed from the ambulance bay two floors below or the helipad on the roof six floors above. More than a dozen bodies in those pink scrubs surround each patient until they are stable or no longer have a pulse.Read the whole article here.
It’s a rush of what staff and veterans call “organized chaos” that was responsible for saving more than 8,000 lives last year. The routine at Shock Trauma, the nation’s oldest — and, they say, busiest — trauma center, meanwhile has informed trauma care around the country and world with its focus on the “Golden Hour” — the idea that rapid treatment of traumatic injuries prevents deaths.
It evokes a pride, if not an arrogance, in the health care workers there that has helped drive both high admissions and survival rates.
“I’m not allowed to say, ‘Oh my God, that’s awful,’ ” says Dr. Thomas Scalea, physician-in-chief. “I absolutely believe I am saving that person’s life, even right up until they die. We believe we can do the impossible, and sometimes we do.”
Join us in prayer!
Saturday, September 21, 2013
Thursday, September 19, 2013
Showing Support
When Thomas was first in the hospital, and visitors were checked into the Shock Trauma Center, they were given bright pink visitor bracelets. The visitors continued to wear these bracelets as a sign of support and physical reminder to pray for Thomas, Natalie, his care team and others in similar situations.
Friends of the couple commissioned the design and production of silicone bracelets for those who were not able to come to the Hospital!
The design of the bracelets include the following elements:
THOM & NAT PETERS - SHOCK TRAUMA PRAYER TROOPS
+ IHSV {IN HOC SIGNO VINCES - In this sign you will conquer}
AMERICAN PAPIST - FIAT MIHI {Let it be done unto me}
We are going to begin a mailing of these bracelets to past donors who have given $100 or more. Going forward, any donation of $100 or more will receive one as well.
We are grateful for all of the love and support that Thomas and Natalie have received and these are meant to be both a thank you and physical reminder to “pray without ceasing” (1 Thessalonians 5:17).
Join us in prayer!
Friends of the couple commissioned the design and production of silicone bracelets for those who were not able to come to the Hospital!
The design of the bracelets include the following elements:
THOM & NAT PETERS - SHOCK TRAUMA PRAYER TROOPS
+ IHSV {IN HOC SIGNO VINCES - In this sign you will conquer}
AMERICAN PAPIST - FIAT MIHI {Let it be done unto me}
We are grateful for all of the love and support that Thomas and Natalie have received and these are meant to be both a thank you and physical reminder to “pray without ceasing” (1 Thessalonians 5:17).
"Rejoice always.
Pray without ceasing.
In all circumstances give thanks,
for this is the will of God for you in Christ Jesus."
Thessalonians 5: 16-18
Join us in prayer!
Monday, September 16, 2013
Update: Exercises, Haircuts, and Bits of Progress
Thomas' therapists definitely do not hold back and have a creative approach. His routine continues to evolve and change and he improves every day. The more he can take on, the more he is given to do. The challenge never decreases. Here are some things they've been working on:
Join us in prayer!
1) On Wednesday,
with the help of occupational therapy, Thomas was able to take his first
shower since the accident! This is great for building strength and
coordination.
2) Also on Wednesday, his physical therapists introduced an exercise involving a standing frame. It’s a metal
frame that he is strapped into, and with the help of a lever, they stand
him up. The exercise is meant to help re-engage his brain with the
feeling and concept of standing, in hopes that eventually he will once
again be able to manipulate his legs. It also helps build core muscles. An effect of SCI
(spinal cord injury) is difficulty regulating blood pressure, so Thomas' first try in the standing frame lasted 3 seconds. After three tries he
was up to 42 seconds. They will continue working on this.
3) We mentioned previously that electrical stimulation (called stimming)
has been used on his legs while he uses a powered bike. This week they
began stimming on his wrists and hands. This exercise is also meant to
re-engage his brain and awaken the muscles in his hands and wrists to
help with the recovery of fine-motor skills and strength-building.
4) One
of the goals is transitioning him into a manual wheelchair, however to
achieve this goal, and several others, Thomas really
needed control of his triceps. Thomas and Natalie had been told that it is not uncommon for
C-6 SCI patients to never get their triceps back. Needless to say Thomas made this his prayer for the week and on Thursday he noticed these muscles engaging once again! On Friday his therapist confirmed that they were back!
Meanwhile: in
anticipation of the weekend, Natalie surprised Thom with a visit from
his favorite stylist for his first haircut since their wedding (!!!) -- he is
clean-cut once again and looking dapper!
Natalie
continues to work with Thomas as he strives to take on more tasks
himself. It requires patience and ingenuity as he works to adapt and
utilize the limited dexterity he has. His creative problem-solving is
definitely working to his advantage; this weekend, on his own, Thomas was
able to hold and serve himself coffee, a slice of pizza, and
sandwiches. Exciting steps towards independence!
Upcoming:
On Wednesday
the couple will visit Thomas' neurosurgeon for the first time since moving to rehab, to see how his neck is healing from the fusion
surgery. They are hoping for good news! Please keep this in your prayers.
Join us in prayer!
Saturday, September 14, 2013
Thom's Cool Tricks
Thomas is working on regaining his dexterity. We mentioned earlier that he is now able to use an iPad by typing with the knuckles of his pinky fingers. We wanted to show you a picture of what the IT guys rigged up to make this possible. Pretty cool, huh?
Thomas has also been practicing by picking up gummy bears or other small food items and eating them. He is getting pretty good at it!
OT has also been training Thom on how to use a “helping cuff”. This device assists Thom to hold things, like a toothbrush or spoon. He even recently tried a pen!
Thom’s optimism and creativity is a huge bonus and will be necessary in the coming weeks.
Join us in prayer!
Thomas has also been practicing by picking up gummy bears or other small food items and eating them. He is getting pretty good at it!
OT has also been training Thom on how to use a “helping cuff”. This device assists Thom to hold things, like a toothbrush or spoon. He even recently tried a pen!
Thom’s optimism and creativity is a huge bonus and will be necessary in the coming weeks.
Join us in prayer!
Friday, September 13, 2013
Happy Friday
Published: We have been collecting articles written about Thomas and put them together on our "Clippings" page. If we missed any, please email us.
Fixed: The PayPal button is officially working again! Thank you for your patience while we got this sorted out.
Updated: Visitor Policy - kindly see the Visiting & Reaching Out page.
Reminder: Cards of encouragement are welcome, as always, and can be sent to the National Organization for Marriage at the address listed at the bottom of this page.
Watch for tomorrow's cool "Tech & Tools Update".
Thank you for reading, praying, and giving!
Join us in prayer!
Fixed: The PayPal button is officially working again! Thank you for your patience while we got this sorted out.
Updated: Visitor Policy - kindly see the Visiting & Reaching Out page.
Reminder: Cards of encouragement are welcome, as always, and can be sent to the National Organization for Marriage at the address listed at the bottom of this page.
Watch for tomorrow's cool "Tech & Tools Update".
Thank you for reading, praying, and giving!
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Thursday, September 12, 2013
Family Meeting & Outlook
Thomas and Natalie had a meeting last Friday with Thom’s team of doctors, therapists, head nurse, and case manager to talk about the progress he has made thus far, and what the goals are, both upcoming and long-term, for his rehabilitation. Here's a look at much of what they talked about.
PHYSICAL THERAPY
The current focus of physical therapy is to increase the strength in Thom’s shoulders and upper body. The long-term goal is to help him become more independent, so he can do more for himself (feed himself, lift things, get dressed, etc.), and eventually transition from his power wheelchair to a manual one.
PT is also focused on helping him regain balance. He can now sit balanced with his legs crossed at “contact guard level,” meaning he only requires someone spotting him. Another exercise helps him balance with his legs stretched out in front of him and his arms outstretched behind him. So far, he can do this exercise at a 50/50 relationship with the therapist, meaning the therapist does 50% of the work. Achieving good balance is critical for many of PT’s long-term goals, including being able to assist in transferring to a wheelchair or bed, getting dressed, etc.
Late last week physical therapy introduced a stimulation bicycle into his routine. This motorized bicycle operates his legs like he is riding a bike, while electrodes are place on his legs that send shocks in an efforts to “re-train” his brain. He said that it feels really good.
OCCUPATIONAL THERAPY
Occupational Therapy sessions are currently focused on dexterity and upper body coordination. They are working with him on learning how to roll from side to side and so far this relationship is about 50/50 (again, meaning the therapist does 50% of the work).
Thomas has successfully learned to operate his own power wheelchair and can get around the rehab facility quite well! Their long-term goals include helping him be able to feed himself post set up (meaning after the meal is prepared and set up for him), dressing himself with limited assistance, and some personal grooming as well (brushing teeth, etc).
NURSING
The nursing team is closely monitoring bowels (including re-training), skin, and pain levels. SCI (spinal cord injury) patients are especially at risk for skin breakdown and pressure sores which can be incredibly serious and, if incurred, would ultimately halt rehabilitation until healed. They will be teaching Thomas how to check for signs of breakdown on his own.
OUTLOOK
Looking ahead, the doctors anticipate that Thomas will be living at rehab for the next 6 weeks before being released to come home. (It can be extended to 8 weeks, based on his needs and therapy goals.) While the idea of living at home once again is exciting, rehabilitation certainly doesn’t end. The doctors hope he will be a candidate for the day program at rehab, which would provide the same therapy routine per day, but would allow him evenings and weekends at home. Following that (for however long it is needed) Thomas would transition to out-patient therapy. More will be know as they go down this path; there is a long journey ahead.
Housing was also discussed, and unfortunately, the newlywed’s current living situation will be impossible for Thom. The quest for a handicap accessible apartment is now underway and will need to be expedited so that medical equipment (wheelchair, etc) can be ordered and arrive in enough time to be ready for his discharge.
Note: if any of our local readers have recommendations of DC apartments that are handicap accessible (elevators, roll-in showers, etc.), please email us at the blog address.
Their case manager is currently compiling additional documents for Natalie to help them with all of these next steps. Much of this depends on what insurance will pay for/allow in terms of length of continued stay, how many days covered for the day program, out-patient rehab etc. Please keep this in your prayers, as well.
Join us in prayer!
PHYSICAL THERAPY
The current focus of physical therapy is to increase the strength in Thom’s shoulders and upper body. The long-term goal is to help him become more independent, so he can do more for himself (feed himself, lift things, get dressed, etc.), and eventually transition from his power wheelchair to a manual one.
PT is also focused on helping him regain balance. He can now sit balanced with his legs crossed at “contact guard level,” meaning he only requires someone spotting him. Another exercise helps him balance with his legs stretched out in front of him and his arms outstretched behind him. So far, he can do this exercise at a 50/50 relationship with the therapist, meaning the therapist does 50% of the work. Achieving good balance is critical for many of PT’s long-term goals, including being able to assist in transferring to a wheelchair or bed, getting dressed, etc.
Late last week physical therapy introduced a stimulation bicycle into his routine. This motorized bicycle operates his legs like he is riding a bike, while electrodes are place on his legs that send shocks in an efforts to “re-train” his brain. He said that it feels really good.
OCCUPATIONAL THERAPY
Occupational Therapy sessions are currently focused on dexterity and upper body coordination. They are working with him on learning how to roll from side to side and so far this relationship is about 50/50 (again, meaning the therapist does 50% of the work).
Thomas has successfully learned to operate his own power wheelchair and can get around the rehab facility quite well! Their long-term goals include helping him be able to feed himself post set up (meaning after the meal is prepared and set up for him), dressing himself with limited assistance, and some personal grooming as well (brushing teeth, etc).
NURSING
The nursing team is closely monitoring bowels (including re-training), skin, and pain levels. SCI (spinal cord injury) patients are especially at risk for skin breakdown and pressure sores which can be incredibly serious and, if incurred, would ultimately halt rehabilitation until healed. They will be teaching Thomas how to check for signs of breakdown on his own.OUTLOOK
Looking ahead, the doctors anticipate that Thomas will be living at rehab for the next 6 weeks before being released to come home. (It can be extended to 8 weeks, based on his needs and therapy goals.) While the idea of living at home once again is exciting, rehabilitation certainly doesn’t end. The doctors hope he will be a candidate for the day program at rehab, which would provide the same therapy routine per day, but would allow him evenings and weekends at home. Following that (for however long it is needed) Thomas would transition to out-patient therapy. More will be know as they go down this path; there is a long journey ahead.
Housing was also discussed, and unfortunately, the newlywed’s current living situation will be impossible for Thom. The quest for a handicap accessible apartment is now underway and will need to be expedited so that medical equipment (wheelchair, etc) can be ordered and arrive in enough time to be ready for his discharge.
Note: if any of our local readers have recommendations of DC apartments that are handicap accessible (elevators, roll-in showers, etc.), please email us at the blog address.
Their case manager is currently compiling additional documents for Natalie to help them with all of these next steps. Much of this depends on what insurance will pay for/allow in terms of length of continued stay, how many days covered for the day program, out-patient rehab etc. Please keep this in your prayers, as well.
Join us in prayer!
Tuesday, September 10, 2013
Weekend Recap
It’s been quite a full week for both Thomas and Natalie since we last wrote!
Thursday brought two welcomed events and kicked off a really great weekend!
First, Thomas’ trach was taken out - completely! Yes, he is completely breathing and talking on his own! Over the next few days, speaking was a little more challenging, as air escaped out of his trach site, but he was still able to speak and the site is nearly closed! Another victory -- and something that, early on, was thought to be unlikely!
Second, the last of the Zmuda/Peters family were able to visit him in DC! Natalie’s older sister and husband, along with one of their two children, were in town from Thursday evening until Monday evening. They enjoyed a wonderful reunion and spent as much of the weekend outside as possible, exploring the beautiful outdoor garden at the rehab facility.
{With special thanks: This trip would not have been possible without the incredible generosity of a caring donor who used miles to purchase the tickets! We are so very grateful for this!}
TUESDAY
Thomas has 18 of the 20 staples removed from his posterior incision (the one at the back of his neck) and his doctor said everything is healing very well!
PT introduced stomach work on the mat, which included planking and push-ups! Thom did well and continues working hard!
With the nifty assistance of his “helping cuff,” for the first time Thom completed his entire teeth brushing routine by himself from start to finish. It’s incredibly exciting to see the small steps of each day’s therapy build up to the successful completion of a task! He also fed himself lunch for the first time!
Thomas met a couple other C-6 SCI patients and really enjoyed the chance to hear the stories of other men with the same injury. Both of these men have been in rehab longer than Thom and were incredibly encouraging about the process and are making great progress!
Join us in prayer!
Thursday brought two welcomed events and kicked off a really great weekend!
First, Thomas’ trach was taken out - completely! Yes, he is completely breathing and talking on his own! Over the next few days, speaking was a little more challenging, as air escaped out of his trach site, but he was still able to speak and the site is nearly closed! Another victory -- and something that, early on, was thought to be unlikely!
Second, the last of the Zmuda/Peters family were able to visit him in DC! Natalie’s older sister and husband, along with one of their two children, were in town from Thursday evening until Monday evening. They enjoyed a wonderful reunion and spent as much of the weekend outside as possible, exploring the beautiful outdoor garden at the rehab facility.
{With special thanks: This trip would not have been possible without the incredible generosity of a caring donor who used miles to purchase the tickets! We are so very grateful for this!}
TUESDAY
Thomas has 18 of the 20 staples removed from his posterior incision (the one at the back of his neck) and his doctor said everything is healing very well!
PT introduced stomach work on the mat, which included planking and push-ups! Thom did well and continues working hard!
With the nifty assistance of his “helping cuff,” for the first time Thom completed his entire teeth brushing routine by himself from start to finish. It’s incredibly exciting to see the small steps of each day’s therapy build up to the successful completion of a task! He also fed himself lunch for the first time!
Thomas met a couple other C-6 SCI patients and really enjoyed the chance to hear the stories of other men with the same injury. Both of these men have been in rehab longer than Thom and were incredibly encouraging about the process and are making great progress!
Join us in prayer!
Tuesday, September 3, 2013
9/3: Labor Day Weekend
Thomas enjoyed a fairly quiet weekend. Because of the holiday he only had a couple therapy sessions. He and Natalie enjoyed some down time together, continued to settle him into his room, explored the outdoor garden at rehab, and caught up with some friends. He is ready and excited as his week kicks off!
In our last post, we mentioned that his trach would be downsized and they would begin "blocking" or "plugging" it so that he can practice breathing completely on his own, through his mouth and nose. Also, the "plug" in the trach, allows Thomas to speak without a speaking valve, in his regular voice. Well, Sunday morning this smaller trach went in and he is actually tolerating the "plug" for the entire day! This is great progress and a very good sign that phasing out the trach completely will go smoothly.
Thomas has been working with the IT tech at rehab to come up with a clever way for him to use an iPad for reading and hopefully even email soon! He can operate the touch screen with his knuckle and with a little practice might even tackle email in the near future. :)
Stay tuned!
Join us in prayer!
In our last post, we mentioned that his trach would be downsized and they would begin "blocking" or "plugging" it so that he can practice breathing completely on his own, through his mouth and nose. Also, the "plug" in the trach, allows Thomas to speak without a speaking valve, in his regular voice. Well, Sunday morning this smaller trach went in and he is actually tolerating the "plug" for the entire day! This is great progress and a very good sign that phasing out the trach completely will go smoothly.
Thomas has been working with the IT tech at rehab to come up with a clever way for him to use an iPad for reading and hopefully even email soon! He can operate the touch screen with his knuckle and with a little practice might even tackle email in the near future. :)
Stay tuned!
Join us in prayer!
Sunday, September 1, 2013
An Introduction to Rehab!
We know. We know! You're all wondering what rehab is like!!! We were too -- it's been a very full couple of days for Thomas and Natalie as they settle into a whole new routine. Natalie sent us an update yesterday, and it's just chock full of awesome information. Rehab is good. But it's hard too.
Here's what she reports:
- Thomas has an extensive team of specialists, therapists, and doctors who are committed to him and his case. Other than a rotation of nurses, the rest of his team, at large, will be consistent. They will get to know each other and can best evaluate progress and his needs.
- His days start at 6:30 am with breakfast. Every day he is given a printed hourly schedule and from this they move him through his day, one type of therapy session to another, until about 4:00pm! There are no sessions on weekends, though Thomas is hoping he'll be able to do some "work" on Saturdays as well. Some sessions are in his room and others are in the main gym.
- Unlike at the hospital, he has his own of everything, meaning, his own wheelchair fitted to him, etc. It saves a lot of time that they aren't constantly starting over every day.
Thom's progress thus far:
- During his first evaluation with his primary doctor, we learned that, while Thomas' fracture is C-5, his injury is actually considered / classified as a C-6. This score has to do with a whole lot of factors, but basically Thomas has sensation and function below the C-5 level and consistent with C-6. So that's cool!
- His first morning in rehab he was taken off trach collar completely, which means he is receiving no oxygen from an outside source. He is no longer attached to anything whatsoever! Perhaps this should have been the first bullet, because it's downright amazing to see!
- Equally amazing, Thomas wears his speaking valve all day long and only takes it off to sleep! Awesome! With ease he is able to communicate all of his needs, ask questions, and be very involved in his therapy sessions.
- His secretions are almost completely gone! He said it's totally unreal. All the pain, and struggle, and work he had to do weeks ago to just be able to breath, and now it's nearly all gone. (Natalie writes: "I count this among our miracles :) He is so happy!")
- Upcoming, they will downsize his trach and will start putting a "block" on it for short periods of time. Once the "block" can be tolerated for a full day, the trach can come out. The "block" forces Thom's airflow to only be through his mouth and nose, like we all breathe, weaning him off the trach. (A fun side note, the doctor who will be working on this has a 100% success rate in getting patients off trach support. Thomas is in good hands!)
- He passed his swallow evaluation in 5 minutes flat! He no longer has any restrictions whatsoever! The first thing he asked for was a Dr. Pepper :) His appetite is finally back and he is eating great! He said the food is actually really good. They get the week's menus in advance and Natalie helps him pick all his meals. (Your RB is thrilled to report that they use some local and organic ingredients - a big improvement from the hospital's offerings.)
- His pain is still under control, in fact, they were able to wean him off a little bit. He gets a little neck pain from time to time, but it's really more sore muscles from working hard - and that's a good kind of pain!
- And speaking of his neck, he can move it a lot more to look around. It's still stiff from the surgery, but some movement / flexibility coming back - and they expect much more as the weeks go on.
- He has a cool strap for his hand to help him feed himself - he's getting pretty good at it, with a little assistance. It's a lot of work though, so his meals mostly have to be fed to him still. But he's practicing. He can also hold his own cup, or small bottle, and bring it up to his mouth for a sip. His arms are considerably stronger even in the last 3 days...he can even make the sign of the cross once again - something he's been working hard at!
PLEASE NOTE: Thomas does have a roommate, and his room is very small, so please do not send gifts, flowers, balloons, etc. There simply isn't room for it all. Cards are welcome, as always, and can be sent to the National Organization for Marriage at the address listed at the bottom of this page.
Join us in prayer!
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